MyCysticFibrosis.com

I came across this website via the Cystic-l website. It's basically a website where you can keep track of EVERYTHING (related to CF/transplant that is). You can create a diary, keep track of medications, assessments, PFTs, lab results, exercise log, etc. It provides templates to enter all this information. Then it provides reports, graphs, etc. to view stats over a period of time. For example, you can view a report of your PFTs over the last 2 years, 3 months, etc. I think its an AWESOME website for CF patients (children, teens, and adults) AND a great one for CF Parents. It provides everything for you, all you have to do is enter the information. I think it is good for CFers who are also transplant patients. In particular the medication log, your weight, and PFTs.

I would highly recommend checking it out. Keep track of your or your child's hospitalizations, PFTs, weight, sputum cultures and sensitivities, medications, diabetes, calorie intake, etc.

http://www.mycysticfibrosis.com/