Friday, May 8, 2009

National CF Awareness Month

I know a couple of blogs have already posted this...but I wanted to share the news as well......May is declared as the National CF Awareness Month.

National Cystic Fibrosis Awareness Month originated in 1999 when Lenora Degen, whose son has cystic fibrosis, gained the support of Senator Ben Nighthorse Campbell (R-Colo.), who embraced the mission of establishing a special recognition week for cystic fibrosis through a Senate resolution. The campaign extended to a month-long event and is now held in May, in conjunction with the CF Foundation’s national event, GREAT STRIDES, a walk to cure cystic fibrosis.

In just three simple steps, you can make your voice heard and further the CF Foundation’s mission of finding a cure. A Senate Resolution must be passed each year to continue recognizing May as National Cystic Fibrosis Awareness Month!

*Identify Your Representative
*Contact Your Representative in DC or at home by e-mail or telephone
*Keep Us Posted: Please let the Public Policy Department know what action you have taken.

“Congress is one of the most influential groups of people, and we need them on our team. “They were asked them to form a CF caucus for us, and they did. Now it’s our turn to support the Caucus’ efforts.”