Saturday, December 5, 2009

Ultrasound Report & More

Apparently the ultrasound I had on Thursday to check out the fluid in my abdomen turned out normal. The only thing they saw was pelvic fluid. I was told by my regular GI doctor that the pelvic fluid was normal, and just sympathetic womanly fluid. I may discuss that with my GYN though just to make sure. My GI surgery nurse coordinator was going to ask my surgeon if there was anything else she wanted to check out. This was Thursday, and she never called me back. So I guess not. It's a little frustrating, because my stomach is really big, bloated and pregnant looking and very uncomfortable/painful at times. I'm praying that maybe I just need a little more recovery time and that will get better. The more frustrating part is that I can only eat very little and only certain things. I haven't gained any of my weight back yet, which can be concerning and dangerous. I have to talk with my transplant coordinator again on Monday to see what they want to do about the liver lab values being too high.

I really don't want to have to schedule more appointments or go back to my regular GI doctor right now. (at least not before Christmas). So we'll see how this next week goes, i guess.

I worked 12 hours yesterday (Friday) is so slammed right now and I really need the extra/overtime hours. Our boss had approved a half of day (4 hrs) for everyone to work today (Sat) and really wanted everyone to come in. I had plans on it, but just couldn't get out of bed this morning. After the stressful week and pulling 3 all-nighters, my body was aching for some sleep. So I decided to just that. We also had a CF event going on today which I was helping out at. But with not feeling that great and with it being frigidly cold outside, I decided against that too. Tomorrow I have a few fun things planned and are hoping I feel good and energized for those. I have to fit some studying in as well for my final Anatomy lecture exam this coming Wednesday, although I'm not even sure if it's possible to pass the class now. I'm so upset and stressed with that!

I hope everyone is having a great weekend! I should have time not to keep up with blogging more frequently. I'm not sure how many of you follow Brandi's blog, but we have a dear CF friend of hours who recently was transplanted. She is having some complications including 40 lbs of fluid build-up, a severe aspergillus infection and induced pneumonia from the aspergillus. They put her back on the vent last night. So if you feel led, she could definitely use your prayers. Her name is Lauren and she is a sweet heart. She has no family or friends down here with her, and her mom is in end-stage cancer, and was just turned over to hospice yesterday!


Anonymous said...

Praying for Lauren... <3 Sorry you haven't got any answers, I'll be praying for you too, of course ;) .


CaprisCrusaders said...


I just wanted to tell you that you are precious, inspirational, amazing, beautiful, strong, and a huge gift from God to this world. I have a 7 yr old daughter with CF. We just moved to TN this year for her to be a part of a trial for VX-770. I have dedicated my life to the CF Foundation and set a goal to raise $200,000 by dec. When Capri was diagnosed I said to myself if one person comes to christ because of Capri's illness than it is worth it. I use my fundraising letter every year as a oppurtunity to reach out to everyone I know and share our story and the love of christ. I truly see the spirit of God within every CF patient I have ever meet. I truly believe that it is a group of people that have been equipped with what they need to endure all the pain and suffering they endure and God uses you to tell a story to this world. I again see that in you and I see that in you in an amazing way!! Again I am blessed to read your story and your witness to this world on the miraclous love of christ. It is such an honor for me to get a glimpse of god in you. The last year has been amazing and our family has seen firsthand the miracles of god and the way that he has a divine plan and if you trust him and follow him he will lead you to places way better than we could ever imagine. Please know that I will be praying for you and your family. THANKS FOR THE EXAMPLE YOU GIVE AND THANKS TO GOD FOR THE WORK HE DOES THROUGH YOU!! GOD BLESS

Nicole Faulk