Tuesday, February 10, 2009

GI appt results

I had a follow-up appointment with my GI doctor today! While he still doesn't know what's going on....he still seems proactive and wants to figure it out. He now thinks I have gastroparesis, which basically means my stomach isn't emptying properly. Right now there are 1 or 2 meds that can help with this, but they aren't very successful. He has ordered a gastric emptying study to be done. I had one of these about 2 1/2 years ago, but the hospital that did it screwed up the results. I dread doing this study again, as it's one of those that takes at least 2 hours....and my back is not going to be happy! The good part about it is that it shouldn't require any IV's, etc.

He also wants to get a biopsy and get a good look at my stomach next time I have a bronchoscopy for my lungs. He thinks that will be a good idea! I'm not sure at this time when that will be, but I imagine in the next few months, depending on how my lungs do.

So for now I guess I will just continue taking anti-nausea meds, and treating my symptoms. I did have a bad nausea and throwing up spell Sunday night. They come at random, and I just have to deal with it when it happens, unfortunately. While I'm glad my GI doctor is trying to be proactive, it's still extremely frustrating being nauseated every day, and throwing up at least 1-2 times a week. Yesterday morning I woke up with chest pain, really bad junky cough, and just dragging all over. Today I feel better...and are hoping it was just a 1-day thing.

I am going to get my port flushed on Thursday and eat lunch with a nurse (friend) of mine as well. And no...I haven't learned how to flush my own port neither taught my parent's how either. I prefer to do it this way.

Tomorrow I am going to volunteer at our local CFF and work on our Great Strides Walk for our area! I'm on the committee and pretty much helping coordinate all the teams...so I need to get busy!

I am enjoying my break from my internship this week, but somehow have filled it up with a good bit of stuff!!

Thanks for your prayers this morning!!


Sarah said...

Anti-nausea meds yuck. I hope they find an answer soon.

Emily said...

Hey girl,
Oh, I wish there was a quick "cure" for this stomach thing. So sorry you have to go through this. Just wish these bodies of ours would work well. =) Your doing great though. Thanks for the update!

Alicia said...

Oh, yuck is right! What an incredible supporter of the CFF cause you are!