Monday, September 7, 2009

Labor Day Update's been a LONG week!!! I started the IV abx Thursday evening after the home health nurse accessed my port. As I said previously, I'm only doing 1 iv abx since I'm doing the inhaled TOBI and still on the oral Cipro. The iv abx (Fortaz/Ceftazidime)is every 8 hours, hence 3 times a day. Since Friday (and this past Wed and 1/2 of Thursday), I have slept pretty much the entire day. I've been so exhausted! I hate sleeping that much, but I can't really seem to go without taking several naps during the day. So basically I've just been sleeping and hanging out watching TV or on the computer. I did spike another fever on Saturday, but it seemed to be short-lived.

Today I decided that I would try and get out of the house for a little bit, since i am planning on returning to work tomorrow. So I managed to shower and get ready to run a few errands, which included Target, and shopping for a cocktail dress for an upcoming CFF Wine Opener. About 30 minutes into shopping, I started feeling awful...and really awful. I got lightheaded, nauseated, and was breathing extremely hard. After shopping at JC Penny, I decided to run through McDonald's to get a coke and fry to see if that helped...not much, but a little. I made it through Target, barely, with stopping every few minutes to catch my breath. After Target, I returned home, as I couldn't stay out any longer...I felt so bad. I am so frustrated now, and don't even know how I'm going to make it to work tomorrow, let alone class Wed night. I expected to feel the GOOD effects from the antibiotics by now.

I'm hooked up to my Fortaz now, and are about to take a nap. I was trying to go through the day without napping, but doesn't look like that's going to happen now. My back is also in extreme extreme extreme pain.

I had planned on going to the lake...but it didn't happen. My grandfather had a stroke Sunday morning, so my parents spent most of the day Sunday down at the hospital with him. My parents did drive down to the lake today, but I opted to stay home. But I'm going to try to go next weekend (even though I'll still be on iv abx).

Well....I'm off to nap now! If you feel led, please pray for a MUCH better week this week, that I will be able to go to work and class Wednesday night, and that I gain some much needed energy! Thanks!


Aspiemom said...

I'm sorry to hear about your grandfather and hope he recovers well.

I'm also sorry to hear you aren't feeling better on your abx yet. that's miserable. It's an awful feeling to know there are things to do and you just aren't up to doing anything, even simple.

I've been feeling very fatigued and needing to take naps. I've been on IV abx 2 wks and go to clinic Wed.

Katelyn said...

Katy, I'm so sorry you're not feeling the positive side of antibiotics yet. I know it will kick in soon enough. Keep resting and taking care of yourself - you're in my prayers!

Katelyn said...

I can't believe I just spelled your name incorrectly. Does that make me a bad friend? I think it qualifies me.

Kevin said...

Hi Katey!
Enjoy reading you blog.
I pray you have a much better week this week.

God Bless,
Kevin, fellow Dbl lung tx CF'er

65 Roses for Marcia said...

Oh Katey, keep resting and I hope that the abx kick in very very soon! Nap on... Hope the rest of your week goes much better!! And hope your grandfather will be fine too...

Jane said...

Yuck! I'm saying a major prayer for you as soon as I finish this! :)

Hope your grandpa is recovering.

The Fortner Family said...

Thinking of you and hoping that you feel better soon.


Kory said...

Thanks for the specifics for prayer, Katey. Hope you start feeling better soon!

Graciy said...

I was in such a great mood as I was reading your blog (your blog always puts me in a good mood) and then I hit the part about your grandfather and my heart broke. I love all old people. It's just something wise and funny about them that just makes my day. I really hope everything turn out okay and there is no damage.

Why do you still have to do TOBI after your transplant? I'm still learningthese thing so please bare with me.