Thursday, October 1, 2009

Recap: About Me Part II

Here is the About Me Part II recap post!

So I'm picking up from where I left off. The decision was just made for me to be evaluated for a lung transplant at St. Louis Children's Hospital. I went through the evaluation process and ended up being a good candidate for lung transplantation. So I became listed in the spring of 1998.

My health actually began to stabilize and hospital stays weren't quite as frequent. However, I did have scoliosis at the time, and it got to the point where surgery was needed to correct the curve. I underwent back surgery the summer before 9th grade. The surgery went pretty smooth as well as the recovery process.

Although I went in the hospital several times that summer, 9th grade proved to be a very successful year. We began to get calls from St. Louis stating that they had lungs for me. However, because my lung functions had improved somewhat and I felt pretty good, we passed on the lungs. At this time, if you passed on lungs more than 3times, you had to consider going off the lung transplant list or becoming inactive. During my 9th grade year, the decision was made to be reevaluated and become inactive on the lung transplant list. Being inactive allows you to still accumulate(or it did at that time) time on the transplant list, but not actively be listed.

Beginning in 9th grade, I did exceptionally well (for me, that is). I only required hospitalizations once during the summer through the 11th grade. I was able to go through the school year without missing any school (for CF that is). It was great. I was involved in many honor societies and community service groups, and managed to maintain an above 4.0 grade point average. I really thought things were turning around! I had a great year hanging out with my friends and just enjoying life overall! Now, I was (and still am) the type of person to stretch things to their limit. I would usually wait as long as possible to go in the hospital for tune-ups!

During 12th grade, I decided to go in for a tune-up during our Christmas break of the school year. I felt like i could not wait until the summer, like I had done for the 3 previous years. During Spring Break of my senior year, my health took a turn for the worst, and there was no "bouncing" back this time. I went in the hospital emergency room during Spring break with an O2 level of around 50%, and having a very difficult time breathing. It was during this stay, that I became dependent on oxygen 24/7. Although I only spent about 3 weeks in the hospital, I was required to finish up the school year at home.

To Be Continued....


Lovin Lane said...

I enjoy reading about your experiences.. so dont forget the 2nd half k ( well I can wait until you are done babysitting, enjoy)

Beth.. One Blessed Nana said...

Katey - looking forward to the next installment.

A friend of mine has a daughter (13) with CF. She was diagnosed at 5 wks and is in and out of the hospital quite often. She has developed diabetes and now has an insulin pump SHe's had several lung procedures.

I will pray for you precious one. I have a prayer blog and would love to put your name on it.