Thursday, April 30, 2009

Airgas

As I mentioned on Tuesday, I worked at an Airgas Chopper Tour Event. Airgas was having an open house at their store, so they had all of their vendors there as well. Dreamland BBQ also catered the lunch. The event went really well. The auction items sold for a good bit and we raised a good bit with the pictures. I don't have a grand total amount yet, but I know it was at least $1200!! We have another one today, Thursday, at another site. The money from these two sites will go towards our local Great Strides Walk. I had so much fun on Tuesday, and it was a beautiful day. Here are some pictures below!







Tuesday, April 28, 2009

CFF Events

Right now, as well as most everyone else in the country, it is CF Great Strides "season" per se. Our Alabama-Birmingham Chapter is responsible for 7 walks. We also have a satellite chapter in Mobile, AL that is responsible for 7 walks around Mobile and the panhandle of Florida (Destin, Panama City, Pensacola). We are a busy chapter for a small state. As you know, I've worked on staff with the CFF and absolutely LOVE LOVE participating and helping out whenever and wherever I can. This includes working and attending all of our Great Strides Walks from the Birmingham Chapter. I have so much fun!

This past Saturday, we had our 2nd annual Tuscaloosa walk. We had perfect weather and an AWESOME AWESOME turnout. Our goal was $42,000 and we walked away that day with $63,000. And we have more money coming in. All I can say is WOW!!!!! Here a few pics from the day! (I'm usually the picture taker).

Me caught up in balloons.


We gave all the CF Families/kids a white balloon. Right before everyone started walking, they let the balloons go. It was pretty neat!

Christie and Me (remember me giving updates on Christie back when she got her new lungs last fall)

Home Depot with the "kids corner"

Airgas Chopper

Today, Tuesday, I am working at an Airgas-Chopper tour. Airgas, a nation-wide company has partnered with the CFF for about 3-4 years now. Airgas is the United States' largest distributor of industrial, medical, and specialty gases and related equipment, safety supplies and MRO products and services to industrial and commercial markets. My dad uses the company for supplying his oxygen tanks at his practice. They always do Chopper tours (motorcycles). They pick certain locations to have them at, and raise money for CF. A person can pay $5 to have their picture made with the chopper. This year they have also decided that they will match whatever donations are raised that day. They are a fun group to work with. And tomorrow I'll be working all day at a local Airgas a few minutes from my house. They are also having an auction as well. Visit their website to find a chopper tour near you!

The Airgas Chopper tour will do more than just excite Airgas employees and customers – it also will benefit a great cause,” said McCausland. At many of the Chopper appearances, tour attendees will be invited to make a $5 donation and have their picture taken with the Chopper as part of Airgas Puritan Medical's national partnership with the Cystic Fibrosis Foundation's GREAT STRIDES campaign.

This Saturday, we have our Huntsville Great Strides Walk. I will also be attending that one...and I can't wait. I try to help out with all the other walks, but Birmingham is my walk, and I am very involved just like I would be if on staff. Last year, I actually coordinated our entire walk, which was a great experience. This year I'm glad that someone else is doing that!

So...a busy week for CFF events!

On another note...my parents and I are traveling to Orange Beach tomorrow night through Thursday afternoon. I am going to an awards luncheon at the AAHIM annual meeting to except an award I was nominated for. I'm really excited about that!

If I don't blog until this weekend...you can guess that I'm probably pretty busy!

Update on Health: Fever-free since last Friday. Still wheezing, but not too bad. I guess the abx are working!!



Monday, April 27, 2009

Music Monday

This week's song is "Empty Me" by Chris Sly. I really like this song! It speaks so much truth! We are truly empty when we are not filled with Jesus Christ. And everything is a much "lesser" thing compared to Him. I don't know about you..but I feel so much better when I'm filled with the Holy Spirit! I uploaded two music videos...one with the lyrics and the other is of Chris Sly singing live. You know I like when the lyrics are shown....but I also wanted to see Chris Sly perform and he has a little intro in this particular video. I forgot how awesome of a voice he has!! ENJOY!





Thursday, April 23, 2009

Clinic Report

Yesterday, I had a follow up transplant clinic appointment. And it went really well! It's the best appointment I've had probably in a LONG LONG time. And I have felt so much better than I have in a REALLY LONG time (except see update at bottom of post). My chest xray was clear. My PFTs were 43/42, which is 10% higher than December, and overall higher than they've been in a LONG time. My lab work was good. Several of my levels are screwy: I'm dehydrated: Creatnine was 1.4 (i stay around 0.8 or 0.9), HCT was: 27 (which contributes to why I feel tired, but they don't ever do anything about that); Magnesium: 1.4-low, but they let me skip out on supplemental IV mag for now; and my BUN was high as well. I'm not sure why I'm dehydrated, but are instructed to try and drink LOTS and LOTS of fluid. The only symptom I have had the last few days is some major wheezing and a little bit of sinus stuff. They were really proud of yesterday's results!

My doctor also started me on Bactrim. Evidently, they are putting every single one of their patients back on this drug, regardless if the person is 6 months post-tx, or 5 years post-tx. They said it prevents a type of pneumonia: PCP, and that recently, when patients have contraced this type, it hasn't been good results. I'm all about preventing, especially since I get pneumonia so much. But I hate to add another pill to my regime. Oh well!

I had two good friends at clinic yesterday (CF/tx), so we spent a lot of time visiting and two of use ate lunch afterwards. I also managed to land a media relations job...where I will be the feature of a graduation story on the news and UAB media site. Not sure the details yet. It was very random. The local news was there interviewing another patient. My coordinator told the UAB medial relations person about me, and we started talking. She was so excited..and so am I! I've already signed consent forms! I can't wait!~

So yesterday after clinic when I got home around 3:00 or so, I was very exhausted and very nauseated. I rest for several hours, then headed to babysit at 6:30. I was dragging, but just thought I was tired. At the house where I was babysitting, I kept dosing off on the chair watching TV and was very cold...again, just thought I was tired and that the temperature in the house was cold. I got home, lied down, and BAM...I had a fever....totally unexpected. Real quickly, I started feeling crappy. Pissed....frustrated...you name it, I feel it. My mom was sweet and doped me up on Tylenol all night and attended to my needs. I felt some better this morning and made myself get up to go to my internship. This was my final day and I need the hours. I really wasn't feeling that great after a few hours there. So I explained the situation to my instructor and she let me leave early, still counting as many hours as I needed to. THANK heaven for a great and understanding instructor. So needless to say, I'm home, and resting. My fever is currently 99.3 (which is still a little high for me). My coordinator/doctor decided to start me on 2 weeks of oral abx, Avelox, to knock whatever this out. It just doesn't make sense to me...everything was perfect yesterday. The only thing we think it could be is a sinus infection. My Dad thinks maybe I reacted to something they did at clinic, but I really can't think of anything that would. It really amazes me...how I got for about 1-2 weeks of feeling great,perfect clinic appointment, and all of a sudden, I start running fevers again. It makes me mad...I have LOADS of school work to finish up this week. Oh well! Please pray that the oral abx kick in SOON and I'll be back on my feet in no time! I have a great strides walk I'm supposed to be working at on Saturday as well.

And...one last thing..I got my cap and gown yesterday...YAY!!!

Wednesday, April 22, 2009

Beach Pictures

Here are pictures from my beach trip!
We stayed in Orange Beach, Alabama!
Our condo is right next to the Flora Bama restaurant. On Saturday, the Flora Bama hosted the annual Mullet Triathlon. LOTS and LOTS of people were there! I missed the swimming part, but we saw the runners and bike riders!


Our group (My cousin, aunt, me and Mom) at Live Bait Restaurant.

Very rough waters...red flag all week!

Laying out!


Mom and me at Live Bait Restaurant!

Me and My cousin at Flippers Restaurant!
Beautiful sunset Wednesday night!



All in all it was a good trip. I hated the weather...and I am a big laying out person when it comes to the beach, but it was nice to get away and spend time with the girls. My aunt and cousin went back Saturday morning, because my aunt got sick. So the majority of the day on Saturday and through Sunday, it was just me and my Mom, which was nice. We did do a little bit of shopping, and hit the outlet mall on the way back home. My mom and I decided we would go back to the beach in September, hoping for better weather (as a family trip with my brother and Dad).

Tuesday, April 21, 2009

Still here/update

I apologize for not posting until now. It's been crazy!!! I am back from the beach and will post pictures later this week. It was nice to get away, but the weather was definitely sucky...20-30 mph winds each day, and very overcast..not much sunshine at all. Nevertheless, it was still a good trip (and I managed to get a small tan). I'll post more beach details later! Monday was back to reality...internship all day, as well as today and this Thursday. After that...I'm DONE!!! YAY!! I have MULTIPLE assignments and tests this week in addition to my final program comprehensive exam this weekend (which is a mock-examination of my RHIA licensing exam)....and I'm not yet prepared. So I have a LOT of studying to do between now and then!

I have a follow up transplant clinic appointment tomorrow (Wed). I'm pretty sure all will go well. My vertigo is completely gone (and was as of last Tuesday). My foot is better, but is still in pain. I'm planning on re-xraying it this week (since I've been walking on it a lot). I've got a little bit of sinus and wheezing stuff going on, but don't think it's anything to worry about!

We've got our Tuscaloosa Great Strides Walk this Saturday, which I'll be attending and working at. I'm really excited, and it's supposed to be HOT and beautiful this weekend!!!

So...a busy, busy week. My sole goal is to complete everything for school and ACE that exam this weekend!! Graduation is just a short 2.5 weeks away...YAY!!! (Still a lot to do before that though).

I'll do my best to post more this week...i have more things to share....promise!! I have been reading and keeping up with everyone else :)

Wednesday, April 15, 2009

Beach

Not sure if I've mentioned or not...but I'm off to the beach (Orange Beach/Gulf Shores) today for our annual girl's trip!! YAY!! I'm so excited...and nothing is going to stop me from having fun!! We will return Sunday afternoon. I will post when I return, although I'm sure it won't be Sunday. I have to go to my internship Monday and Tuesday when I return, and then transplant clinic on Wednesday next week!

Just to give you an idea of what the place looks like where we stay, I've included a link. (This is just a rental property's pictures, but is the same layout and basic style of where we stay). My aunt rents our condo from a friend of hers, so where we stay is designed differently, but has the same floor plan! I LOVE IT!!!

http://www.meyerre.com/property/Phoenix_X_506

I am asking for your prayers for a safe and smooth trip! I would really love to enjoy this trip WITHOUT any extra struggles/surprises along the way :)


Monday, April 13, 2009

Music Monday

I didn't feel like doing a Music Monday post earlier today. But after reading the sweet comments and what I wrote earlier, I wanted to do one. Despite what happened this weekend, I did not and will not ever forget the true meaning of Easter. God died for our sins, and saved us from Satan's wrath! I've been so blessed, that I need to remember this Easter and praise God for his sacrifice! I didn't mean to sound like a complainer with my earlier post, I'm just really frustrated. Someone reminded me that I'm not being punished, but possibly tested. I've wrote a post on this very subject before, so the least I can do is acknowledge it! The past few months have been a really big struggle for me, physically and emotionally. I've stayed positive, determined, and really let God control things! It's funny...it's almost like as soon as I turn everything over to HIM, the struggles start. So I'm interested to see what God does with these struggles, how he turns them around, or how he tests me with them. I know one thing for sure, I wouldn't be here today if it wasn't for our Lord and Jesus Christ dying on that cross for our sins! Blessed be his name!

I absolutely LOVE this song (and maybe have already used it before...if so, sorry). WOW...such powerful lyrics!! At my former church, I remember learning the motions to this song! We still do it at my current church, and I can just imagine the congregation singing this song Sunday morning. Ah..how I miss the worship on Easter morning. And although I was extremely sick yesterday, I wish I would have just taken a moment to acknowledge the true meaning of Easter! So lavish in this song....lift our Lord's name on high! He came from Heaven to earth to save us!! I'm so glad Jesus is in my life!!



(Quick update: My dizziness and nausea are better. I managed to eat something today (it's been since Friday night since I've eaten). And I also went to Sips N Strokes with some friends (i know..probably not the best choice...but hey...I'm stubborn sometimes). I'm still taking Dramamine and will take it for a few days! No internship tomorrow...resting at home, finishing up a few school assignments...and best of all, beach trip on Wednesday!!)


Post-Easter

I hope everyone had a great Easter weekend! Mine sucked...yes, it sucked. Friday afternoon i left my internship early because, well my instructor said I could, but i was also not feeling great! Saturday morning i woke up feeling dizzy. It progressed throughout the day, and I ended up sleeping most of the day. I started thinking it was true vertigo, because everything else was fine (blood pressure, blood sugar, etc.). Sunday morning i woke up very sick. I couldn't hold my head up, and my whole head and body was spinning constantly. Because of so much dizziness, I was extremely nauseated and spent the entire day throwing up. It was awful. I was popping in anti-nausea meds all day and my Mom bought me some Dramamine (spelling?). My transplant coordinator told me just to rest and stay hydrated. It was awful. But the frustrating part was I had to miss church and Easter lunch with my family. I'M SO MAD! I was convinced that nothing else would happen to me, but i guess i was wrong???

Today I am better, but still dizzy and weak. I had to skip my internship....which makes me even more mad! I just don't understand why all this stuff is happening to me at once? I feel like God's punishing me for something, but I don't know what? I don't understand???

Saturday, April 11, 2009

Final answers to Q&A Post!

Here's the final installment of my answers to the wonderful Q&A Post questions!! Thanks again girls for asking!!!

Kateyln asks:
Do you go to school full time or part time? Full-time. With the exception of 1 semester, I've always gone full time, or what's considered a full-time schedule. Right now I'm only taking 10 credit hours, but consider it a lot more due to the 240 hour internship! But only 1 more week of that...and graduation is right around the corner...YAY!!

Aspiemom asks:
How do you change font color within the post? After typing my response, I click on the tab "Compose." (It's right next to the "Edit Html" tab when composing a post). Then I choose the button that has a "T" and a color block. This allows you to change the color within your post! Hope this helps! (I love changing fonts too, if you haven't noticed)!

Cara asks:
What did you want to be when you grew up? What is your dream job now? A Neonatal Intensive Care Unit nurse. I've always wanted to be a nurse, and that's still my dream job. My plans changed slightly for a few years, but then I realized that nursing is truly what i want to do, and I'm going to do my best to accomplish that (on my way). Although, I do have a love and passion for CF. And having worked on staff at the CF Foundation, I would love some day to be Executive Director ( i think) of our local CFF. I've been told I possess all the needed skills and qualities (just not sure if it's something i want to pursue). I can tell you though if a permanent job opportunity opened at our local CFF, I would probably take it. My past positions have been temporary (even thought they lasted more than a year).

If you could travel anywhere in the world, were would it be? WOW!! That's a hard question! I would probably choose Hawaii! I love going to tropical places, and prefer warm vs. cold places. I've always wanted to go there!! Of course, I would love to go any place over seas as well, for the vast amount of experience with different types of culture, people, food, beaches, etc. But I'm a beach person all the way :)

What do you look for in a guy? I don't usually answer these types of questions, but will for you guys!! First and foremost, I would like my future hubby to have a relationship with the Lord! I would like for him to be open and honest. I believe that to have a true relationship, you have to be honest with each other. I want a guy that's funny, or at least has a little bit of humor (to balance out with me, because I'm not very humorous, and when I am, it's by accident most of the time). I'd like a guy that's pretty sociable, that gets along with his family and friends, that wants children, and is just a fun-loving guy!! I'm sure when I meet Mr. Right, I will know, regardless if he possess all the above qualities.

Thanks again for the great questions!!!

Friday, April 10, 2009

Grilling Goodness #26

GoldenGoodness

Sorry guys for not posting the rest of this week. It's been a crazy week! Welcome back for another installment of Grilling Goodness! I hope that you've had a wonderful week! To participate in this Friday Meme, visit Golden Goodness

1. What's one of the best things you've seen lately? Hmmm...definitely not a movie, since I really haven't seen any movies. I'm going to stay that recently, due to the several not-so-good events that have happened in my-life, I have received an enormous outpouring of love, support, prayers, and inspiration. So many people have sent me sweet and encouraging words. It's amazing to the see the love and support of your friends (including my bloggy friends). It's amazing, and it truly does make a difference in how you look/view those certain events. So thank you for your kind words, prayers, and encouragement during this last month and a half or so! I know I always have the support of family and friends, but to see it and hear it like it's been lately is just wonderful and comforting!

2. Has Spring brought you something you don't like? Hmmm....tough question if you are . Spring in our part of the country, well, isn't quite Spring. We rarely have Spring-like weather...it jumps from being cold, to hot, to cold, etc. And usually is always accompanied by a lot of rain, tornado watches/warnings, etc. So in reality, I don't care for Spring weather..but like it much better than winter. I would rather just go ahead and move to Summer weather though.

3. What kind of sandwiches do you like? Believe or not, I'm not a sandwich kind of person. But when i do eat them, it's usually ham and Swiss cheese.

4. Do you carry GermX with you at all times? I do have Purell (I think) hand-sanitizer in all my purses and hand bags. Now, whether or not i use that on a constant basis is a different story.

5. Does each person in your house have their own hamper or do you have a central hamper for everyone? No hampers in my house. We have a separate laundry room, and just inside the door is a big basket. We put all our dirty clothes there.

6. How often do you balance your checkbook? I usually never balance my checkbook. I have duplicate checks. I also have a Microsoft Money Software program on my computer. So anytime there is a money transaction, whether deposit, withdrawal, credit purchase, etc., i record it there. I will admit right now, that my bank balance does not match exactly with my Microsoft Money Balance. I'm not sure where it got off, but I usually just adjust to it to match. I don't write that many checks anymore either.

7. What's the hardest thing you've done lately? Broken my foot. I've never broken a bone (well, with the exception of my wrist at 18 months..but don't remembers that), so this is a new concept. Luckily, the fracture did not require a cast, and I am able bear weight on it, just depending on my pain level. However, the place on my foot where it's fractured, makes it very difficult to walk on. I have crutches, but are highly uncoordinated with those. One thing that bothers me, is that I hate being dependent on other people. Since I live with my parents, they have been great. And don't want me on my foot more than I have to. I've been in the hospital so much this past month, that I've already had my share of asking people to do things for me, and It was getting old. But oh well! Thank goodness for them though...couldn't make it without my loving and supportive parents!

8. Are you a texter? Yes, although probably not as much as a lot of other people. I text the most when I'm in the hospital or when there is some big event going on. My Dad actually still pays my cell phone bill. And unfortunately, I don't have unlimited texts. So if I go over my allotted amount, I have to pay...which I don't like. Although, i know I went over in the month of March...WAY over...but he never gave me my bill. Maybe he paid it as a gift for being sick...lol!

Monday, April 6, 2009

Music Monday!

I'm finally able to post Music Monday! Sorry it's been awhile! It's been quite hectic lately! So this week's song is "Homesick" by Mercy Me. I'm posting 2 music videos...the 1st one is the song with the lyrics. The 2nd one is actually a video I created in honor of Shaun (with Homesick as the background music). I created the video (1st time to ever do something like this) with OneTrueMedia and used their premium features when creating it. But then when I got to the end, ready to share and post (last week), I had to pay to use the premium features. So this is very simple, something I wanted to do to honor him and show others a little bit about him!

This is an awesome song!!It really tells how I've been feeling and dealing with Shaun's passing! I can close my eyes, and still see his face, still hear his laugh. In Christ, there is no goodbye, there is no end! When we lose loved ones, we get homesick...longing to see them again. But this homesick is a longing to see those loved ones in Heaven! We don't understand the Lord's ways, because we are so far away from home. Lord, give me the strength to make it through somehow! The lyrics of this song are priceless!



I like posting my songs with lyrics. Even though you can listen to them, I think sometimes we don't hear the exact words. And by seeing the lyrics, it gives us a better understanding of what the writer and artist are trying to teach us or telling us!



Shaun was an inspiration.....and will always be in my heart forever!

Sunday, April 5, 2009

X-ray results

So after my Dad xrayed my foot this morning, it looked like I had fractured it, so I went over to an urgent care center. I did not want to go, but was hurting so bad, and knew I didn't have a choice. It turns out that I did fracture my right foot. It's not horrible, but still fractured. The doctor gave me a boot and crutches and I'm supposed to stay off of it as much as possible, ice it, and take pain meds. AHHH!!!! I'm SO furious!! I'm not sure what I'm going to do about my internship. If I can just make it to the department, I can sit down for the majority of the day. The problem is just getting there, because I can't put any pressure on my foot without being in a lot of pain. At least I don't have a cast! It's been a trying week, and not quite sure why this broken foot was part of God's plan? Oh well!

Weekend Wrap-Up

I thought I would do a short post on my weekend and wrap-up of this past week. WOW...this week has flown by! But it didn't fly by without it's struggles and difficult times. As you know, I lost a very close friend on Wednesday! I've had a very difficult time dealing with this, but just keep trusting God and reminding myself that God called him home for a reason. On Wednesday, after I visited with Shaun and his family, I visited with another CF/transplant patient who was in the hospital. I also had lunch with one of our CF/transplant doctors who has become increasingly involved with the CFF. We had a nice lunch! Afterwards, I went home for a much needed nap, and babysat that night!

I did not make it to my internship on Thursday. My body was so exhausted, I could not get myself out of bed that morning. That was not my plan, but really couldn't get up and going. I think the events of the day before, coupled with no sleep at night, contributed to that feeling. I got some much needed down time on Thursday. Thursday night, Shaun's mom called me to give me funeral arrangement info. I think talking to her stirred up my emotions again, and it took awhile to regain my composure. I also had to call several people to pass along the info, which was hard to do.

Friday I got up and went to my internship til about 12:00. Then headed to get my hair cut @ 1:00. I'm so glad to have my hair shorter, re-highlighted, and a little thinner. It feels SO much better and I don't like having really long and thick hair when I go to the beach. After a 2+ hour hair appt, I came home and took a make-up school exam. It was a busy day, but I felt pretty good overall. But the thought and memories of Shaun and his family were with me throughout the entire day. Thank goodness for supportive friends and family.

Yesterday (Sat), I had a CF speaking engagement. The event was a Church Women's luncheon and fashion show. And they chose to have me speak about CF and my testimony briefly. It was a lot of fun, and I was glad to get the opportunity to do this. My Mom tagged along with me! The speaking went pretty well, although I think I spoke a little too fast (one of my flaws). I think they got a good bit of donations though, and the ladies who asked me to come were very appreciative of me being there. This was a difficult decision for me to attend this event. Shaun's funeral was being held at the same time, down in Louisiana. I wanted to be there...my heart really wanted to go. But I knew that Shaun wanted me to be speaking about CF instead of driving down there. And multiple people reassured me of that too. His Mom initially told me not to come anyway(it's about a 6 hour drive), because I had been really sick this month. And she wanted me to take care of myself. But it was still so hard to not be there! But as someone reminded me, Shaun is now in Heaven, and that although is spirit would be at the funeral, He wouldn't. So I decided (after much emotional havoc) to speak on his behalf.

After the event yesterday (it was about 1 hour away), my Mom and I spent the remainder of the day together. We had some good mother-daughter time. We decided to go shopping when we got back in town, and ended up staying out til about 7:30 pm. We haven't done that in awhile, and it really was not in the plans for the day. But as we were driving home from the CF event, we looked at each other and said, hey...let's go shopping! I had had an extremely stressful week, and what better way to help that other than shopping??

We ended up at Wal-mart last night as our last stop. As I was walking in, my right foot buckled out from under me, and now it is severely sprained, if not broken. I am in so much pain from it, and can't walk on it at all....seriously. I can't put any pressure on it, and it hurts to even use my leg muscles to life my foot up. As soon as my Mom gets home from church, I'm going to get my dad to xray it. (He's a vet and has his own practice). I'm really frustrated and mad, because I HAVE to be at my internship tomorrow. But as of now, I can't even touch it! So now, more stress has been added to my week! I'm not very good at hopping around either, because of my decreased leg strength.

Well...that's my week in a nutshell(ok...a little longer post than planned). I'm glad it's a new week. I have plans on attending my internship 4 days this week. I have 1 CF event Thursday night. I am babysitting Tuesday night. I have several school exams/quizzes. And Wednesday I am supposed to return to transplant clinic to see if my pneumonia has resolved. However, I may be skipping that appointment if I have to miss a day of internship due to my foot. I'm feeling like the pneumonia has cleared, as my only remaining symptoms are ones that are going to take awhile to recover (such as energy, and breathing). But I'm not sure if my coordinator will let me skip it. So please pray that my foot will heal quickly and enough where I can stand to walk on it. Please pray for me as I'm still having a hard time dealing with the loss of Shaun, and please keep his family in your prayers!

Next weekend is Easter, and then I'm supposed to go to the beach that following Wed! (and at that time, my internship will be over with...if everything goes as planned).

I hope everyone had a great week, and has an awesome week to come!! Thank you all again for your love, support, and prayers for my friend Shaun! It means a lot!

Oh...and the layout of my blog will be chaning, as soon as I have time to install the changes!! But be on the lookout!

Friday, April 3, 2009

Q & A Post-Answers, Part II

Here are more questions asked from my Q & A Post! Thanks again for asking all of these great question!! I'm going to one more post of questions that were asked that have nothing to do with CF/transplant! (I hate doing really long posts).

Katelyn asks:

Would you have another lung transplant if you were presented with the opportunity to do so? Yes, absolutely! Not that I'm a big fan of going through what I went through with my transplant. But if my health got to that point, and I was given the opportunity, I would do anything to extend my life!

How will having CF effect your occupation of becoming a nurse? Are you not worried about bodily fluids and germs? I'm concerned, but not so much worried. I'm more worried of me not having the energy to get through nursing school! I've never been much of a worrier post-tx (or pre, for that matter), about germs, etc. I am careful and avoid sick people when possible and wash my hands when needed. But I'm not a germaphobic (spelling/word??). I will, however, try and choose an area to work in where there is less risk of catching stuff (avoiding pulmonary floors, etc.). I would love to work in a Neonatal ICU. My plan is to work with pediatric patients as well, but will have to cross that decision upon completion of nursing school! I may even look into working in a Physician office or become an ER nurse??? I would LOVE LOVE to work
with CF patients. But unfortunately, that would not be the best thing for me or the patients.
-------------------------------------------------------------------------------------------------

Marcia asks:

What was it like after your transplant,breathing with new lungs? Could you tell the difference right away?? Yes, pretty much. I stayed on the ventilator for about 3 days after my transplant. For the 1st couple of days off the vent, I had a hard time adjusting to how it felt without oxygen. I had become so dependent on it, so it was more of a panic thing because my 02 saturations were perfect. So the doctors allowed me to use some 02 off and on and at night for a little while. But to get me to go without it completely, they had to trick me by turning the 02 off (without me noticing). The 02 thing (can't think of the name...sorry) was behind my bed in the ICU, so I couldn't see. After I got used to how I was breathing...it was AWESOME!!!! It feels so great to be able to breathe!!!

What do you have to do now post transplant to take care of yourself?Is is mostly meds?? Yes, it is mostly meds! The most important meds are the anti-rejection meds, which keep the lungs from rejecting your body! In addition, because you are immuno-suppressed, you have to try and avoid being around sick people. You need to be cautious, and wash hands frequently. It is also important to try and exercise and drink lots of fluids! The anti-rejection meds can damage your kidneys over time, so that's why drinking fluids is very importnat (or staying hydrated). For some post-tx patients, like me, I get sick frequently. So I try to not overdo myself, but it's very hard not to for me because I choose to always be on the go. But I make sure that when I feel the slightest bit sick, I call and get checked out, because you never know what it can turn in too. You can't just brush it off like you do with CF exacerbation's, colds, etc. It's much more serious. I do continue to take enzymes for CF and a CF vitamin. That is basically the only thing I have to do related to CF. I do have sinus issues every now and then, so keeping the sinuses healthy and clear is also a big part of post-tx care, because those secreations and bugs can move into your lungs quickly, causing pneumonia.
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Aspiemom asks:
How are your lungs doing with the pneumonia? Currently they are better! Each time I get pneumonia, it varies in severity. With each time though, it takes at least 2 weeks of iv abx to knock it out. The symptom that bothers me the most is fatigue and no energy. It usually takes me awhile to rebound from pneumonia, depending on how severe it is. This time, unfortunately, it was pretty severe (more than in the past), and I'm gaining my energy back extremely slow. I'm also still VERY SOB with activity. But the other symptoms (cough, wheezing, chest pain and fevers are gone). I do not know though if the pneumonia is gone. I will find out next Wed. And just for an interesting fact: It's always just my right lung/lobe that gets pneumonia. I've never had it in my left!
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Cara asks:
Why do you think it is that CF makes people ridiculously good looking and cool? ;)
Hmm...not sure if I have a really good answer or not???? CF is special, we are special people! We endure a heck of a lot of challenges! So at the least, we can look good!! And we're pretty cool people. We have fun, despite our struggles and we can juggle a lot of things at one time. How's that???


Wednesday, April 1, 2009

R.I.P. Shaun

Shaun passed away this morning around 8:25am. I didn't expect it to happen this quick! I'm an emotional wreck, but know Shaun is no longer in pain, and is with his Lord and Savior. I did go up to the hospital this morning, per the family's request, to say goodbye and express my condolences to the family members that were there. It was hard seeing him, but I'm glad I had the opportunity to do that! We had grown so close!! I only made it to my internship for about 30 minutes, before leaving to go to the hospital. And decided not to go back!

Please continue to pray for Shaun's family! This is going to be a very difficult time for all of us!

Note: Shaun did not die due to his CF (directly that is). He passed away from what started out as pneumonia. That's all we know. He was given a wonderful year after his transplant,and he really did live it to the fullest. He received his transplant in Dec. 07.

Thanks!